The Journey So far…
- In the past year, SCAF carried out several of our projects including our main Know Your Genotype Campaign (KYGC) across a number of communities in the FCT and events. We have carried out over a 1000 free genotype tests, genetic counselling and awareness events this year alone.
- We have also continued our Sickle Cell School Clubs (SCSC) to help Secondary School children understand the disease and arranged engaging activities to promote awareness.Persons found to have sickle cell disorder where given drugs and school students were not only given drugs but provided with their fees and warm clothes to enable them stay healthy and keep them in school against all odds.
We also work with the Sickle Cell Support Centre based in Abuja to pay the hospital bills and supply medicines and other essentials to sickle cell patients who cannot afford it.
We also work with NIPRID in Abuja on a Free Niprisan program. This provides the anti-sickling drug to patients with chronic sickle cell anemia for free while monitoring their response. We currently have 10 patients on the drug, the majority of whom are children, and they have shown improvements since placement on the drug.
To mark World Sickle Cell Day and National Blood Day 2015 we organized a week long activities with the theme “Break the Sickle Cycle”, starting with media rounds across all the major radio stations to inform the public on the importance of knowing their genotype. We concluded with an awareness walk across the centre of Abuja which was also a resounding success.
In addition, we carried out blood drives in collaboration with the National Blood Transfusion Service (NBTS) to ensure that persons with sickle cell have access to free blood when anaemic.
For more information on our activities, please check our
Facebook: Sickle Cell Aid Foundation
Find attached our video link.
The Future is bright
Our plans for 2015 involves a replication of our activities in other states as our activities have so far only been based in the FCT area councils. We intend to focus across the Northern states where sickle cell awareness is particularly low, and also Lagos because of its high population density. We intend to roll out our KYGC and SCSC in Kaduna, Kano, Nassarawa, Plateau and Lagos.
To this end we have created a manual to ensure a standardized approach in our activities and are currently engaging volunteers, medical personnel and local health officials on these states to begin in October.
We are also aiming to increase the number of patients we have on the NIPRID program. Finally we have a number of patients who need hip replacement surgery but cannot afford the surgery, and we hope to fundraise for them.
The funds generated by connected Dash would be used to fund our various programs including KYGC, SCSC and NIPRID. It would also help us roll them out across our target states. Most importantly it will contribute to the funds we require to help patients with their surgeries.
Our long term goal is to push for policies to better improve the lives of persons with sickle cell disorder, and your contribution will go a long way in achieving this.
To Support this Charity / Charitable Cause even after DASH project ends this year, Please send your donation to:
A/c Name: Sickle Cell Aid Foundation
Bank : Zenith Bank
A/c No: 1012488295